Discharged

Day 2 was our favorite kind as it resulted in a Discharge from CHLA.  They wanted to make sure that Jake would eat on his own and this morning he woke up hungry and ate a little in the morning.  His Dr. came by and said he was doing well and gave the all clear to take him off the IV and clear his path to go home.  Jake seemed much better and before long, it was time to leave.  It always feels good to leave the hospital especially this time so quickly.  Jake was in good spirits and excited to come home.  Jake has been doing great all day and was very happy to see family and especially his brother and sister when they came home from school.  All in all, our favorite kind of day, uneventful.  We do have to be very careful with Jake as we don't want him to fall and his head is at risk.  His mouth seems to be healing as well so now he just needs a little bit of healing time and he will be on his way.  #13 is now in the rear view mirror and hopefully we will get a reprieve before anything else is needed.  Tonight everyone needs some well deserved rest so hopefully we will all get some.

Long Day 1

It started early and we went through the normal routines of hospital and surgical admitting and before long we headed upstairs to meet the Doctors.  We discussed the surgical plan and the normal things to look out for and then it was go time.   Jake was brought into the OR and we headed downstairs to play the waiting game.  A couple of hours later we headed upstairs to see Jake in recovery and it was interesting to say the least.  Jake was battling with the anesthesia and was irritable and unsettled.   We tried to comfort him but he was bothered by his IV and of course just wanted to go home.   After about 15 minutes, Jake settled and fell back to sleep.   The good news he said he wasn't in pain and slept it off, the bad news the waiting game for a bed.   Jake slept for several more hours and we took turns eating lunch before he decided to wake up for good.   Jake was in much better spirits with some more sleep in him and we met with the surgical fellow and everything went according to plan.  Jake was going to stay at the hospital for observation but the best news of the day was that he didn't have his surprise allergic reaction like last time.   Small things....  Unfortunately, we spent most of the day crammed into the recovery area because there simply wasn't a room available.   Finally, around 5 we got the news and headed to the 6th floor.   Right after settling in, Jake had a Popsicle but shortly thereafter he was sick and threw up.   This happened several times throughout the rest of the evening and the plans for food put on hold and Jake was put on IV fluids.    Perhaps, the medicines, perhaps blood draining into his stomach from the teeth extraction, Jake was just a bit out of sorts. Jake is sleeping it off now so hopefully he will have a restful night and feel better tomorrow.   His face and head are a bit swollen but overall we will take it as a positive day one.    Thank you to everyone who sent messages, photos and expressed their support.  It truly means the world to us that on these days we feel the love and support from our friends and extended families.   Just know your comments, like loves etc. are allread and felt. 

Surgery #13

Tomorrow marks surgery #13 for Jake.  Call Time is 5:30 am at CHLA for. 7:30 surgery.  They will be working on Jake’s forehead to help smooth out and provide layer over the metal contraption that is holding his head together.  He also needs to have multiple teeth removed which are hidden in his gum line.  On a positive note this is a quicker procedure than his ten hour marathon last time around but always nerve wracking to hand our son over to the surgeon at the hospital.
We will update the blog more tomorrow.