Jake wanted to let everyone know he's ok

Jake Update

Overall, Jake has been doing really well since coming home. He still has bouts of pain and we have to use his pain medicine to help regulate that but much of the day he is filled with smiles. He hasn't let the casts slow him down and wants to go back to crawling and standing. Interesting enough today he figured out a way to use the elbow of his cast to spin his favorite toy. We can't wait till he gets his casts off and see his five fingers and then puts them to use. Hopefully the pain will subside and Jake will soon be back in action on all fronts. He makes us laugh on an every day basis and inspires us with his toughness. Luke better be careful down the road as I think Jake will take him out if he's not nice.

Upcoming Events
Jake and Luke's 1st BDAY May 27th
Cast Removal May 29th

Jake Hospital Photos

Home Sweet Home

Jake was discharged from the hospital on Monday morning in Boston and he was all smiles really itching to get out of the hospital. Few routine examinations and paperwork and off we went. With time to spare before our flight we decided to hit Sam's favorite place in Boston, Newbury Street. A long row of shops and restaurants. It was nice out and Jake seemed to like being in the fresh air in his stroller. Funny thing happened at lunch...We were eating lunch and all of sudden clank and I couldn't tell what was happening as the people sitting next to us looked scared and Sam couldn't stop laughing. Yes he did it again. lil Jakey kicked off his other cast. I told you the doctors underestimated him and I am sure he grew tired of having heavy casts on all his extremities. The people next to us must have thought it was a blooper show as its not every day you sit in a restaurant and watch a cast go flying across the room. Just glad Jake didn't hit anyone with it. We bandaged him up to the best of our ability and now he at least has his feet covered without heavy casts. Before long it was off to the airport to end this leg of the journey and head home. Upon entering the plane we were thrilled to see our favorite stewardess Penny who has been on three of our Boston flights and knows Jake and likes to take special care of us. We saw her on the way in and now she was on our flight on the way home. She brings us cookies and is very attentive to Jake which is always nice on a long flight. The first 40 minutes of the flight had us really worried. Jake was really irritable and wouldn't stop crying and we thought uh oh what do we do and this flight is going to be a long one. But Jake settled in and decided to put his best behavior on by crashing for the remainder of the flight. We welcomed the peace and quiet and were glad Jake got some rest. Gparents Dan and Carol brought our car to us at the airport so we could drive home and it was an unbelievable feeling to walk back in our front door. Jake immediately woke up and was thrilled to see Rosa. He was all smiles and giggles truly happy to be home. This morning was even better as we got to see Luke after 6 days and he shrieked when he saw Sam and was all smiles playing with us and his brother. It is nice to be home with both boys. The next few weeks will bring some discomfort and irritation to Jake but in the end we have made it. We have survived this tough first year facing three surgeries on our young son. He has fought through all of the procedures with the tenacity of a bulldog and his resiliency is something I wish I could bottle and sell. We are comforted knowing that all year long we said let's just get to their first bday when all the surgeries will be done for a few years. We have arrived at this point and let me tell you its a nice place to be. I will update the blog with some photos of Jake soon and look for more updates and in a few weeks the unveiling of Jake's five fingers.
Love,
L&S

recovery 2

Well we found out Valium works as jake slept from 1130 to 4 and slept soundly enough to scare Sam into poking him to make sure all was good. That led to him being up till around 7 and I took over for Sam. Of course only after giving her mothers day cards. Jake slept in my arms most of the morning and he soon had his central line taken out and he was removed from all wires. Jake switched to all oral pain relievers. He started smiling this am and a stroll put him in good spirits. He visited with his new friend joyelle who saw dr upton as well. Its been nice to meet this other family and get a glimpse of what to expect in the future surgeries. Jake is back to his normal self and has played with us today and is being discharged tomorrow am. Dr upton came this afternoon and we discussed jakes progress. Good news being he has family in california and will see jake in la for progress checkups over the next few years. Today has been an interesting day for Sam spending mothers day in the hospital with one child and away from our other but I know seeing jake feel better is the best gift and trumps the massage I got her. All good news with prob just limited pain for jake more discomfort from the casts than anything. We head home tomorrow happy to put a close on this tough year of three surgeries for jake. We smile as we gear up for an end to this after a few weeks and we welcome their 1st bday on the 27th. Here's to an easy plane ride tom night.
Happy mothers day and special thanks to their godmother amy and gparents dan and carol who have watched luke for us.
And stacey thanks for leaving your family to lend support here to us in Boston.

love
l&s