Dr. Visit

The morning started at Children's Hospital to get a look at Jake's hand and progress report.  Waiting for the Dr., we ran into another boy with Apert whose family we know and it was cute to see how Jake and he interacted and a reminder of Jake at a younger age.  Once in the exam room, the mood started to change.   The Dr. started to cut away the bandages from Jake's finger and hand and it didn't sit well with our little trooper.  Our attempts to distract Jake weren't working and he was started to cry and become unsettled.  It was a very difficult five minutes and Jake has never acted like that surprisingly with all he has been through.  He was scared, irritated and wanted to get our of there as soon as possible.  The initial reveal of Jake's hand was interesting as his  thumb did look completely straight and longer.   The reality of his current condition was harder to view as a parent as the screws and surgical entry point were in full view.  Perhaps that was a negative for Jake as well as we couldn't shield his curious eyes from looking at his fingers and hand in full view.   It was difficult to hold Jake in order to get the required photos to send back to Boston but we did our best and Jake did not calm down until we stepped out of the building.  We can't blame him quite frankly but we just hope that he doesn't react in similar fashion on the plan or at the hospital for part two.  The great relief was that at least our temporary mental scare about turning the screw the wrong way was dismissed and we are handling our role properly.   Our anxiety is slightly higher as Jake no longer has any bandages on his fingers and there is no layer of bandage between his contraption and thumb.   At least the splint will help form one layer but fingers crossed no additional issues before part two.