Jake did very well over the night waking up a couple of times but no real issues to report.
Normal routine as far as the doctors swinging by to check Jake out. The plastic surgeons did indicate that most of the pain generally comes from the incision and after a week that should be behind him. We did review a couple of items which resulted in a pain management team and Opthamalogy to swing by for follow-ups.
Jake did start to eat some more today taking in a strawberry/banana smoothie, a blueberry muffin but also had a slight bout of nausea. Jake is receiving Zofran to help with this and he went the rest of the day without incident.
The pain management team dropped by and we did want to let them know in the past we have had some challenges managing Jake's pain. They seemed to be concerned with the overall amount and levels of medication Jake has been taking and they are monitored a transitional wean process for him. We are fine with caution except that it could take various stages which would delay being discharged from the hospital. Their main concern is that the dosages might be too high if he is spending a lot of time during the day sleeping.
Jake has been in very pleasant spirits so it does appear the agitation was the result of the steroids he was taken versus surgery or pain. Jake did go to physical therapy today which had him playing with balls, catching balls, shooting hoops into a small basket, kicking a soccer ball and placing magnet shapes into their designated slots on a white board. At the end, Jake was allowed to get into a specialty bicycle and he cruised down the hallways of the hospital a bit. Jake is still a little wobbly on his feet so he does need some support but overall he is looking great and we were quite impressed with what he was able to do today.
Then it was bath time, Jake was able to take a real bath and we were able to eliminate some tape marks and other annoyances left from the past week in the hospital. Cleaned up and back in some pajamas, Jake was greeted by ophthalmology. They reviewed Jake's vision and tested his nerves and don't feel that there was anything to be concerned about. Jake had complained about his eyes from time to time but with so much swelling its hard to pinpoint what could be the cause. It was a relief to hear the doctor say that he doesn't have any major concerns.
Then it was off for a post-op cat scan. Jake was surprisingly calm throughout and by the time we reached the room again, he was a bit tuckered. Jake has been napping for the latter afternoon recovering from his busy day and it is nice to watch him rest.
The only issue we have had is Jake's right eye has been tearing a bunch and is a little red. Jake isn't complaining but we dont want an infectiom creeping up. After some parent insistence, the eye doctot after being consulted with has decided to come in to take a look.
Hopefully nothing but we shall see.
We want to thank everyone who reached out and participated in Hustle Kindness. The support is amazing and we know the collective spirit is helping Jake heal.
Friday, August 12, 2016
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