Thursday, May 3, 2012

1 week Post-Op

Overall, Jake is doing very well going to school, playing with only a few minor bouts of irritability.   the big issue is still the same issue, the turning of the screw.  Last night, we decided to try the full rotation again and Jake woke up a minute later crying uncontrollable, thrashing and almost inconsolable.   We eventually were able to give him some medicine and calm him down to where he fell back asleep.  We are really struggling with the process as Jake otherwise is doing so well except for when we are forced to inflict pain.  We're not sure we can keep doing this night after night and watch our boy so sad and in pain.   I may call the Dr. to see if this is the expected reaction or perhaps Jake is just a little more sensitive.   We do have a follow up with Dr. Panossian at Children's Hospital on Monday so that should also help answer questions and get a true medical progress report.  Until then, we will try to keep exhaustion at bay and sadness to a minimum.

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