Friday, November 1, 2013

Happy Halloween

Jake slept through the night without issue beyond just kicking mom and dad but we'll gladly trade that for the little man getting some rest.   Jake had been doing well and seemed to be happy with the notion of staying home from school and not having to do homework.   At least in his little mind, there are some valuable trade-offs.  Smartly, he has learned to negotiate and rather convince us why a powdered donut is the food he needs prior to taking his medication.  Who are we to argue?  Some intermittent bouts of pain and soon it came time to remove his CBloc.  The CBloc is a pain medication device that administers directly into his nerves in the shoulder via a catheter.  Till now Jake has been walking around with tubing and wires inside his shoulder area running down into a small black bag.  Like a true champ, Jake flinched more about the medical tape being removed than my pulling out the 4 inch catheter.   Jake then had a nice visit with his godmom playing with toys and reading a book topped off by a surprise smoothie.   By later the afternoon Jake was feeling better and decide he did want to partake in Halloween.  He chose a perfect costume, a vet which came complete with surgical cap and scrubs.  Picture featured below.   We did attend the kids annual Halloween party and Jake did some trick or treating to cap off the net.   Feels like the tough road is beyond us and we are seeing way more smiles than pain incidents.  Jake will return to school on Monday and then get his cast off on 11/20.   Let's hope that baby blue stays on his wrist till then so we don't have any urgent needs to run to CHLA prior.


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