Home Sweet Home

Off only a couple hours sleep, it was time to get up and start the day.  The only thing fueling us besides caffeine was seeing Olivia and Luke for the first time since Tuesday morning.  Jake had a mixed morning at first vacillating between his normal self and a slightly more agitated one.  The latter has been the sign when his pain medicine is needed.  One tough moment to deal with when Jake just asked if he could take it off pointing to his right arm.  The sad face was tough to take but thankfully once Jake took his morning dose, he was very happy and wonder if the combination of being home and being around his siblings did the trick.  We had to adjust his splint a bit so we could actually maneuver the spacing tool into the bolt on his distractor.  The bolt was turned a full rotation as specified and it was hard to know whether it really hurt Jake or he just didn't want us messing with his hand.  Tough to do but hopefully by tomorrow we will have the reassurance either away and be able to be confident that we are doing what has been asked of us correctly.  Yes, a clockwise turn isn't that hard to understand but with what is at stake, we are still nervous that we are performing our task.  By mid afternoon, Jake was playing around the house and seemed in good spirits which was quite the relief.  A visit from Papa, Buba and Adam also lifted Jake's spirits and he was in normal spirits happy to be entertaining and playing.  An additional visit from the Lamberts found Jake trying to run, yell and dance around. The only real tricky part of the day was bath time.  Let's just say our ad hoc trash bag to cover his splint and bandages wasn't the most sophisticated option but it kept him dry while in the bath. Jake went down to bed like normal and we hope he will sleep a full night tonight without issue.  Positive steps for the tough little kid.  Jake always amazes us with his resiliency and refusal to let all of his medical procedures stand in the way of his happy soul.