Post-Op Day 4

Today began at 4am with Jake crying out for us that his arm was hurting him.  We gave him a little food with his meds so he wouldn't get sick.  Jake climbed into bed with us for a couple of hours till Luke and Olivia woke up.  Everything started out like a typical morning in the household until it was time to turn his distractor 1MM or a full clockwise rotation.  Today was one of the more painful emotional moments as it really seemed to hurt him and Jake cried for the next hour.  It was crushing to see our little boy in pain especially when he was doing completely fine otherwise.  We knew the spacing is necessary for the second step of his surgery but to see the effect on him makes you just want to say forget it.  We don't want Jake to look at us like we are hurting him without his complete understanding of why and the need for it.  Finally, Jake was able to calm down and enjoy the rest of his day but we were certainly scarred from it.  Tonight before bed, Jake asked if Daddy was going to use that tool again.  And then commented that he never wanted us to do that again.  To hear Jake say that was devastating knowing that we have to do this every day for the next 30 days.  We expect a full fight on our hands tomorrow as we know he will associate pain with the tool.  All we can hope for that with each passing day, he has less pain and we can turn it without him feeling immense pain.    We are going to try it when he is sleeping tomorrow in hopes that in the two seconds it takes he may not wake up or will wake up and it will already be over.  There is no good option but as hard as it is we will push on with the end goal in mind.